Failure to diagnose.........

[gman313]

respectfully,

we don't know all there is to know about the human body. We just discovered another type of cell under the skin that is essentially another organ.

It is possible a diagnosis is not coming with current knowledge we have and only symptom management is possible.....

[binky11]

I would gladly accept symptom management at this point.

[gman313]

try talking to the folks at the Compass Clinic. doesn't sound like the traditional system is helping much

[binky11]

I am on CBD oil. My doctor actually prescribed it about three months ago. Helps me get through the daytime a bit, with having to take my meds at night now instead of the day. But It sure doesn't do anything for the tailbone issue.

[Kybran]

This sounds like what I have suffered from. And the same run around. Who at the pain clinic did you see. My pain Dr is Dr Etheridge. He has treated me for 10 years now with pain management and injections in my S I joints and my facet joints and yes absolutely both of those can cause debilitating pain. It took 1 year of multiple injections and getting them every 8 to 12 weeks. I finally have a quality of life. Still have pain but not where I want to shoot myself. The hospital is a joke. They just tell you it's in your head especially if your a women..... a man will almost always get treated and search for answers. I could give you more info on what I have been through and what treatments I have tried what has worked what hasn't. And who in kelowna to stay away from. It's a good old boys club with kelowna Drs. Once you have one of the *bleep* Drs and they can't find the cause of your pain you will have a hard fight to get anyone to take you serious. But I absolutely reccomend getting into Dr Etheridge he will fight for you and do his absolute best to get your pain under control. To me it sounds like you have hyper sensitive spinal nerves. Good luck!

[Poindexter]

^^ Know a guy who goes to that pain clinic, provides temporary relief, about a month, which is all some people with structural damage can hope for. But if I were you I'd want to know what the heck is going on because it sounds absolutely brutal.

It does appear to be spine related which is why I'd try another chiropractor. I've been to 4 or 5 over the years and the one I'm using now stands out among them all. Had a headache that wouldn't go away, was diagnosed as tension headaches and given medication which made me feel like a zombie and helped only dull the pain. I went to this chiropractor and he made it go away in one visit. He immediately diagnosed that my skull wasnt sitting properly on my neck. Knowing how many times over the years I've landed on my head it didnt surprise me. Using my shoulders for leverage, he pried my skull off my neck slowly, put it back in place and the relief was immediate. Had forgotten how nice it is to be able to turn my head without it locking up. Recommended him to my mother and sister who have had issues for years, in my mom's case decades, and they both came away with diagnosis and feeling better. He has 30 years experience and used to be the Chiropractor for the Saskatchewan Roughriders, so needless to say, Dr. Dwight knows what he's doing. Best of luck.
https://westkelownachiro.com

[binky11]

I have always thought of this as a tailbone issue, not a spine issue. Maybe that's where I am going wrong, although, again, the only way I can describe it, is it feels like a brick sitting on my tailbone. And it prevents me from laying down at all.
Although on my recent cat scan it said.......Severe degenerative facet disease is seen right L5-S1, they didn't seem to think that was the cause of my pain. I have NO back pain at all.
I started doing stretches for Gluteus Medius Tendinopathy, or Dead Butt Syndrome. I actually felt a bit of relief last night. I am not optimistic that this will cure me, but desperate times call for desperate measures.
The doctor I saw at the pain clinic was Dr Squires.
Kybran and poindexter, you have given me food for thought for sure. At least the pain clinic is covered by MSP. I would like to try another chiro too, I didn't think much of the one I went to. I know my GP would be open to sending me wherever I would like to go. So I am looking at three options now, Dr Etheridge, the chiro recommended above and the Rutland team of girls whom I was highly recommend to go to. However, the last two options cost big bucks, well big to me. But I have two more options now I didn't have before, thanks guys :))).

[Silverstarqueen]

Am on my same meds I have been for years for fibromyalgia and arthritis etc. I've had to take my main day time dose and save it for night time now. It's helps just enough to sometimes stop the vommiting, from the pain. But still can't really lay down. I try in ten minute intervals, laying down that is. Docs are somewhat limited on prescribing pain meds these days.

Some things may have changed in doctors willingness to prescribe pain medication.

http://toronto.citynews.ca/2018/06/06/b ... s-college/

[zerograv]

While I can't relate to the tailbone issue, I can relate to not having a diagnosis.

About 20 days ago I passed out and stopped breathing. Been passing out pretty regularly since then and 3 times in the last 3 days. Been to the hospital had ecg, mri, every blood and heart test you can imagine and they can't find squat. Healthy as a horse they say. Yet I still pass out randomly. Then I feel like garbage the rest of the day. Really starting to effect my life.

There is a reason why they call it "practicing" medicine

[binky11]

Sorry to hear about your troubles. Seems to be all too common these days.
I am in the process of writing a letter to KGH, explaining about the poor quality of care and lack of care and treatment.
I am living one hour at a time right now. It's appalling really. Oh, I have a 20 minute test scheduled in Calgary for December. The flight, hotel, taxis and meals would come to about $1,200. How does one living on disibility afford this?
I know this letter to KGH will probably be a joke, but I am desperate. How can specialist after specialist tell me they know I can't ever lay down without vomiting with the intensity of the pain, then tell me goodbye and good luck with this?
This failure to diagnosis is becoming all to common. And this passing out with you, obviously something is wrong, that must be scary and no doubt is affecting your life. I want to be seen by dr house, if you ever watched that show, purely fictional of course but that's how every patient should be treated. By a TEAM of experts. Good luck to you :)

[Silverstarqueen]

Have they ruled out Chiari Malformation? (unlikely, shot in the dark).

[binky11]

No that has not been ruled out, although the main symptom seems to be balance issues which I don't have. I don't think I have been tested for much really, they give you a cat scan, if if nothing shows up, they say you are fine and send you home.
Although mine came back diagnosing severe degenerative faucet disease, but they don't think that is what is causing my trouble.
I am still pretty desperate and finally wrote a letter to KGH. Well that means interior health. I was very assertive, we shall see if and when I hear back from them. I don't know what else to do.

[kgcayenne]

respectfully,

we don't know all there is to know about the human body. We just discovered another type of cell under the skin that is essentially another organ.....

Interstitia?

The immune system also crosses the blood brain barrier, another recent discovery. Autoimmune conditions are often in clusters. If autoimmune cells enter the brain, weird, atypical things happen.

[binky11]

HMmm, not really my symptoms here either, the main symptom appears to be the need to urinate and pressure on the bladder. I am very grateful for all these possibilities you are all coming up with and research them in hopes of maybe having something I can take to my doctor. I will mention the two above conditions to my doctor. Any suggestions very much appreciated. Not being able to lay down is not acceptable after about 130 nights of this I am truly going out of my mind.

[Silverstarqueen]

No that has not been ruled out, although the main symptom seems to be balance issues which I don't have. I don't think I have been tested for much really, they give you a cat scan, if if nothing shows up, they say you are fine and send you home.
Although mine came back diagnosing severe degenerative faucet disease, but they don't think that is what is causing my trouble.
I am still pretty desperate and finally wrote a letter to KGH. Well that means interior health. I was very assertive, we shall see if and when I hear back from them. I don't know what else to do.

Don't feel too bad. They did a CAT scan on a family member and found an 8 cm hole in his diaphragm, and sent him home with no follow up. They also said that wasn't causing his symptoms, when it obviously was, so you can't go by them saying that. We had to find an internist who said it should be fixed. It could have killed him, but so what, they don't care. If what you have is not going to kill you on their watch, they see no need to fix.
Another family member they were trying to discharge, he looked bad, he coded right there while the poor nurse was doing his vitals. They did not want to do anything for him. They only revived him because family member was right there and insisted. If what you have is going to kill you on their watch, they see no need to fix.
Another family member had an intestinal obstruction. They insisted it was "constipation" and only operated because family insisted.She lived another two years relatively healthy, so not at deaths door yet. So you see how it works now?