New MS Treatment?

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Villagemaid
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Re: New MS Treatment?

Post by Villagemaid »

Oh...and I'm not sure if there is a co-ordinator for a rally in Kelowna...but if anything, all of the other places will be holding them at City Halls.
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peaceseeker
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Re: New MS Treatment?

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Yes, my sister (who also has MS) informed me of this yesterday afternoon...this is just another unneeded blow to those wanting possible relief from some of their MS symptoms. I'm quite perturbed by this action (but not overly surprised - this is the system at work). Isn't it interesting that we are able to treat other ailments with angioplasty (ie. heart arteries, varicose veins) without question - but if your name has 'MS' attached to it?...'sorry, we can't help you'.
"I think our society is run by insane people for insane objectives...I think we're being run by maniacs for maniacal ends...but I'm liable to be put away as insane for expressing that. That's what's insane about it."
~ John Lennon
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Villagemaid
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Re: New MS Treatment?

Post by Villagemaid »

Exactly.....didn't know that these two letters (M and S) held so much power.

I am thinking of starting a Kelowna CCSVI group. Too bad I won't be here for the date of the rally......maybe when I get back from Vancouver we could have our own in front of City Hall.....
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peaceseeker
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Re: New MS Treatment?

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A very encouraging post from 'Bill' - he's the gentleman who received the 'Liberation Treatment' before the hospital shut it down.

http://www.facebook.com/permalink.php?s ... 2832983940

'This is Bill's daily report from today back to False Creek:
End of Day 7

Hard to believe it has been only 1 week, 1 week of feeling 'normal' again, 1 week of having hope that the downward spiral of living with an 'untreatable', take more drugs that won't do anything but temporarily mask the pain, disease actually can have something done to treat its symptoms. At the MS clinic they only offered chemo with horrible side effects and only the possibility of maybe "2 years of temporary delay" max. Talking to patients who have followed this advice and gone the chemo route, it is worse then MS itself. I am so glad I did not listen to their advice!- wow, my head is clear.

In the past 2 days I have been able to do 'consulting', helping by advising people using my professional past experience. Feels great to be a contributor in society again not just a disabled member.

I have noticed a significant improvement in my body posture leading to less muscle strain and soreness in the back. Increasing muscle strength due to increased usage is probably the factor. Whatever it is I am thankful.

In all areas nothing but positives after 7 days.

The only question is: " Why can't all the thousands and thousands of sufferers like me also have a chance at the benefits of this simple procedure?". I pray that soon they will- before they lose more time.

After only 7 days the results have been amazing ...

Fri at 10:41pm'



Another success story...

MS patient describes life after Liberation Treatment
http://www.ctv.ca/servlet/ArticleNews/s ... /20100412/

W5's recent follow-up story on an intriguing new multiple sclerosis treatment developed by Dr. Paolo Zamboni led CTV medical specialist Avis Favaro to meet a number or remarkable MS patients who have tried Zamboni's "Liberation Treatment."

One of those patients was Steve Garvie. Garvie had been diagnosed with secondary progressive MS, the most severe type of the disease. After his neurologist told him to wait for more studies on Zamboni's research, Garvie went instead to see vascular surgeon Dr. Sandy McDonald, who runs an imaging clinic in Barrie, Ont.

A scan of Garvie's neck revealed he had abnormal blood drainage from his brain because of a narrowed left jugular vein. Dr. McDonald and his colleagues unblocked the vein with a small balloon in a procedure called a venoplasty. Now, two months later, Garvie provides this account of how the procedure has changed his life:


Steve Garvie's account can be read here
"I think our society is run by insane people for insane objectives...I think we're being run by maniacs for maniacal ends...but I'm liable to be put away as insane for expressing that. That's what's insane about it."
~ John Lennon
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Villagemaid
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Re: New MS Treatment?

Post by Villagemaid »

I think we should rally at the MS Walk on April 25th.
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peaceseeker
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Re: New MS Treatment?

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The ‘miracle cure’
A controversial new treatment for MS comes to Canada

http://www2.macleans.ca/2010/04/19/the- ... %E2%80%99/

'Last week, in a traditionally appointed Vancouver living room, Dr. Mark Godley made an announcement that could change the face of Canadian medicine. Addressing a multiple sclerosis support group that had formed on Facebook, the anesthesiologist and medical director of False Creek Healthcare Centre shared “very, very good news”: “A patient in B.C. had the procedure done here in B.C. today,” he said as the dozen people gathered erupted in claps, cheers and enthusiastic calls for details. The group here knows the lingo: “the procedure” is the radical and game-changing “liberation treatment” pioneered and named by Italian vascular surgeon Paolo Zamboni that has dominated MS chat rooms and academic research since it was first reported by media last November. The MS patient in B.C. showed results consistent with Zamboni’s, Godley reports: “He has warmth in his hands, the numbness has gone from his fingers, and for the first time [in years] he’s able to lie flat on his back.”

What’s stunning about Godley’s announcement is that, until now, the “liberation” treatment—a simple surgery that sends a tiny balloon to clear a clogged jugular vein—has been almost entirely unavailable in Canada, where it’s considered “experimental” by health officials. Provincial health care plans won’t fund it; doctors won’t perform it. Instead, Canadians have been flying to private clinics in Poland, Kuwait and India, paying upward of $10,000 for the surgery. In fact, the procedure that Godley describes was performed under the radar in an unnamed B.C. hospital, billed as a routine angioplasty. It was done “very quietly without the hospital knowing what he was really there for,” he says. Soon, though, such stealth will be unnecessary: in May, Godley said, his private clinic will be the first in Canada to openly offer the day surgery. “Wow!” cried out one member of the support group. “What’s the cost?” asked someone else, to which another replied, laughing, “Who cares?”

Such excitement has greeted Zamboni’s research among MS patients, who a year ago couldn’t have imagined a possible cure for the degenerative disease that affects 2.5 million people worldwide. Most are diagnosed at a young age—between age 15 and 40—more of them women than men, and most of Northern European descent. Canada has among the highest incidence of the disease—between 55,000 and 75,000 people, with 1,000 new cases every year. Not only is there no cure, researchers have not found a cause. All that’s known for certain is that the symptoms, which include numbness, loss of mobility, bladder malfunction and paralysis, are devastating.

Conventional thinking is that MS is an autoimmune condition that causes the body to attack and damage the protective covering, or myelin, around nerve cells in the brain and spinal cord, making them slow to emit impulses and move muscles. Zamboni’s findings, published in August 2009, point to the disease having its roots in the vascular system, a theory that dates back to the 19th century. When studying the ultrasounds and MRI results of MS patients, the medical professor at the University of Ferrara discovered that virtually all showed a blockage or a narrowing of veins leading from the brain, a condition he dubbed “chronic cerebrospinal venous insufficiency,” or CCSVI. Such blockages, he posited, could cause blood to flow back to the brain, resulting in toxic iron deposits that in turn could trigger MS symptoms. When he cleared the veins using a balloon angioplasty, Zamboni witnessed remarkable transformations: those in the early stage of the disease had a full recovery; those with severe disabilities showed marked improvement—more energy, renewed sensation and movement in hands and legs, and improved vision. Zamboni’s own wife, Elena Ravalli, who has MS and who inspired his research, has not had another attack since she had the procedure years ago.' ...
"I think our society is run by insane people for insane objectives...I think we're being run by maniacs for maniacal ends...but I'm liable to be put away as insane for expressing that. That's what's insane about it."
~ John Lennon
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peaceseeker
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Re: New MS Treatment?

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Villagemaid wrote:I think we should rally at the MS Walk on April 25th.


Unfortunately, I have a prior engagement on that day. I will say (to all those who contribute funds to the 'MS Society' or partake in the fundraising events) that you request your donations and efforts be used toward studying the effects of CCSVI and its relation to MS. This is the real deal people...it is not going away. The simple procedure has shown (at a very high rate) to relieve many symptoms relating to MS...which, to say the least, is a great benefit to those suffering from the debilitating disease.
"I think our society is run by insane people for insane objectives...I think we're being run by maniacs for maniacal ends...but I'm liable to be put away as insane for expressing that. That's what's insane about it."
~ John Lennon
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Villagemaid
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Re: New MS Treatment?

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Yeah...think I'll just stay away and concentrate my efforts in vancouver on May 5th!! I have an appointment in Bulgaria for October. Hopefully it will get done before that!!

I'll keep you posted on my test results down in Vancouver in a couple of weeks. I'll be talking to Dr. Godley then as well.
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peaceseeker
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Re: New MS Treatment?

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Villagemaid wrote:Yeah...think I'll just stay away and concentrate my efforts in vancouver on May 5th!! I have an appointment in Bulgaria for October. Hopefully it will get done before that!!

I'll keep you posted on my test results down in Vancouver in a couple of weeks. I'll be talking to Dr. Godley then as well.


Sounds good Villagemaid...I look forward to hearing of the results.
"I think our society is run by insane people for insane objectives...I think we're being run by maniacs for maniacal ends...but I'm liable to be put away as insane for expressing that. That's what's insane about it."
~ John Lennon
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peaceseeker
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Re: New MS Treatment?

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Why government should fund CCSVI treatment: Taking MS out of the equation

April 23, 2010 10:00 by Dr. Lorne Brandes

http://healthblog.ctv.ca/post/Why-gover ... ation.aspx
"I think our society is run by insane people for insane objectives...I think we're being run by maniacs for maniacal ends...but I'm liable to be put away as insane for expressing that. That's what's insane about it."
~ John Lennon
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peaceseeker
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Re: New MS Treatment?

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Here are some before and after videos of a lady who had the liberation treatment.

To the neurologists out there who are still in denial of this procedure showing benefit to those with MS - the noticeable improvements are incredible! 'Placebo effect' you say?...I think not.

Please forward this to whoever needs to see the great benefits of the 'Liberation Treatment'.

Before
http://www.youtube.com/watch?v=lvwCuPXrKgI

After
http://www.youtube.com/watch?v=KYNhYtVojSQ
"I think our society is run by insane people for insane objectives...I think we're being run by maniacs for maniacal ends...but I'm liable to be put away as insane for expressing that. That's what's insane about it."
~ John Lennon
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Bejvas
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Re: New MS Treatment?

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Because a simple procedure will not generate big profits. As this simple procedure for MS, I imagine there are simple things to cure cancer, HIV, etc, but the most important for the top ones is the profits, so they keep investing on big drugs that will heal something, and generate other illnesses instead to keep you on other drugs.

peaceseeker wrote:Why government should fund CCSVI treatment: Taking MS out of the equation

April 23, 2010 10:00 by Dr. Lorne Brandes

http://healthblog.ctv.ca/post/Why-gover ... ation.aspx
"Just because you're angry, it doesn't mean you have the right to be cruel."
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peaceseeker
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Re: New MS Treatment?

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False Creek Health Care Center
http://www.falsecreekhealthcare.com/


CCSVI Press Conference at False Creek Healthcare Centre - March 2010

Part 1
http://www.youtube.com/watch?v=8ocSlIfTxMs

Part 2
http://www.youtube.com/watch?v=2iPYJhGV ... re=related
"I think our society is run by insane people for insane objectives...I think we're being run by maniacs for maniacal ends...but I'm liable to be put away as insane for expressing that. That's what's insane about it."
~ John Lennon
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peaceseeker
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Re: New MS Treatment?

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Two MPs push Liberals to go positive for a change
Friday, May 7, 2010
Jane Taber
http://www.theglobeandmail.com/news/pol ... le1561031/

'Carolyn Bennett and Kirsty Duncan, both Toronto MPs, gave a passionate and substantive presentation about multiple sclerosis and the reluctance of governments in Canada to recognize through funding a new and controversial procedure to diagnose and treat it.' ...

...“I am not saying CCSVI causes MS. I’m just saying give people an opportunity.”



Is there a conspiracy to keep Canadians sick?
By Bill McIntyre Thursday, May 6, 2010
http://canadafreepress.com/index.php/article/22838

'I have never considered myself to be a conspiracy theorist but recent activities involving health officials and organizations supposedly dedicated to the curing of Multiple Sclerosis (MS) and cancer have given me cause to think maybe I’m wrong.' ...




Experimental MS surgery done under radar
http://www.cbc.ca/health/story/2010/05/ ... alcomments

Procedure could result in rebuke for radiologist
Performed experimental treatment for MS
By Richard Watts, Times Colonist May 7, 2010
http://www.timescolonist.com/health/Vic ... story.html
"I think our society is run by insane people for insane objectives...I think we're being run by maniacs for maniacal ends...but I'm liable to be put away as insane for expressing that. That's what's insane about it."
~ John Lennon
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